Association of Family Ratings of Quality of End-of-Life Care With Stopping Dialysis Treatment

Abstract

Background: The literature surrounding the association of family ratings of quality of end-of-life care with the decision to stop dialysis treatment is multifaceted, revealing the complexities faced by patients with chronic kidney disease (CKD) and their families. Literature Review: Building on this foundation, the research by (A. Richards et al., 2019) investigates the correlation between the cessation of life-sustaining treatments, such as dialysis, and the perceived quality of end-of-life care. Further exploration of end-of-life care dynamics is provided by (Axelsson et al., 2019), who identify barriers faced by healthcare professionals in delivering adequate palliative care to patients on maintenance hemodialysis. The tension between life-prolonging interventions and palliative care approaches is highlighted, suggesting that misconceptions about palliative care may impede timely interventions aimed at improving quality of life. The authors advocate for a more integrated palliative care model, particularly given the high mortality rates among end-stage kidney disease (ESKD) patients. Lastly, the study by (Ducharlet et al., 2023) addresses the challenges faced by kidney clinicians in enhancing end-of-life care provisions. The authors call for the integration of palliative care within kidney supportive care, emphasizing its role in managing both physical and psychosocial needs. Conclusion : In conclusion, the collective findings of these studies illustrate the critical intersection of family involvement, healthcare provider practices, and patient experiences in shaping the quality of end-of-life care for individuals with CKD. They underscore the necessity for a paradigm shift towards more inclusive, patient-centered approaches that recognize the complex realities faced by patients and their families as they navigate the challenging landscape of end-of-life decision-making.